Endometriosis

My Story: Being Treated Like A Criminal

I got my response from the hospital from my visit last month.  I can’t say I’m surprised that the doctor denied everything - I honestly didn’t expect anything different.  What I can’t take is being accused of being a drug addict when I’m simply trying to manage my disease in the only way that the medical community has provided me.  He didn’t simply “discuss the pitfalls of narcotic usage” with me that night, he flat out told me I was looking for more pills to “facilitate my addiction”.  I never, ever want to waste anyone’s time but when I truly believe something is wrong, I want the doctor I’m seeing to do something besides brush me off as a crazy person with a history of endometriosis.  I truly do not think that is too much to ask and certainly am shocked that the hospital’s administration would find a response like the one I received to be sufficient.

It’s moments like these that make me sad because it shows me just how far we have to go as a community.  The doctors need to take some time to understand this condition and how to improve the quality of life of those suffering with it.  They need to take a moment to listen, and really hear their patients because the truth is we all want to get to the same point - I would just like to get there together.

How many of you have had experiences like this?

My Story: Emotional Emotions

I’ve been quiet lately.  It’s been hard to find the words.  I go through these ups and downs when it comes to this disease.  There are days when I feel like a warrior - like I can handle anything - and then there are days like I’ve had this week.  Where the stress is too much and I’m spontaneously crying about stupid things.  It’s so hard to explain the emotional rollercoaster to people.  I can go from being thrilled, excited, giddy in one moment to an absolute basket case the next.  It’s stupid things that set me off too.  For example, yesterday I was finally having a day where I felt like I looked good, starting to get back to my healthy self and then we had a work lunch where they ordered burgers.  I got my gluten free bun and tried to be as safe as possible but I ate red meat and within 2 hours I was in pain, swollen and crying.  The pain always makes me think things like why me and when will it stop and what if it never stops.  I want more better days than bad days but this is one of those weeks where I just couldn’t make it happen.  Maybe next week will be better.

Thursday Thoughts: Endometriosis - The Tip of The Iceberg Documentary

windsweptyellowstickiesofmymind:

The documentary I’ve been waiting and waaaaiting for has finally been released with English subtitles!

It’s a measly, easy $5 to buy and watch online - I’ve just bought it and can’t wait to see it and support the awesome women who made this doco!

As a fellow documentary maker and Endo sister, this makes my heart sing :)

Click here to watch Endometriosis, the tip of the iceberg

I’ve been waiting to see this documentary!  Thanks for the link!  I know what I’m doing this weekend!  Has anyone seen it?  What were your thoughts?